Wednesday, February 2, 2011

Fifty-fifty

Yesterday was our two-week appointment with the surgeon to evaluate Adam's progress after the operation. Originally, he had told us the odds of the Kasai procedure solving the problem of Adam's biliary artresia were one out of three. One third of the time it works without a hitch. Another third of the time the bile starts flowing initially, but then a few months or years down the road, it stops working. Another third of the time it doesn't work at all.

Praise God, we don't have to worry about the last of those scenarios. Adam's bile is now flowing from his liver into his intestines. His color is getting better--there's just a little yellow tinge to his skin instead of the fake tan orange he was before the operation. As the surgeon put it, "We've got a fifty-fifty chance now that this will keep working and he won't have to have a liver transplant. But even if the procedure does fail eventually, at least this will give him time to grow bigger and to be a more viable candidate for the transplant should he need it."

This is a recent picture of Adam. Looking at the picture, you may notice several things. (1) He is wearing a "designer" onesie made by Rebecca Spears. (2) His cheeks are all puffy from the steroids he is taking. (3) He is screaming his head off. This behavior has been very typical for him over the last week. His medication has made him very, very cranky and David and I are starting to go a wee bit crazy from lack of sleep. It's kind of like the first few weeks after the twins were born, or maybe even a little bit worse.

If you would like to continue to keep us in your prayers, our short term prayer request is that Adam will sleep more and cry less. Our long term prayer request (for the rest of Adam's life) is that the Kasai procedure will continue to work.

Thanks for reading and praying! And just to give the twins equal opportunity with the pictures, here's one more photo before I sign out.

Oliver, chilling in his track suit.

3 comments:

  1. So happy to read this. We pray for you guys everyday.

    ReplyDelete
  2. Thank you for the update!
    We are rejoicing with you for good news and will keep praying for you all.

    ReplyDelete

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