Wednesday, June 13, 2012

Our Summer "Vacation"

I am not supposed to be blogging right now. I am supposed to be at the beach. Every year our church holds a Family Camp at Twin Rocks Friends Camp in Rockaway, Oregon. Sunshine or no sunshine, it's pretty much the best summer vacation ever. This year we had registered for our cabin, purchased our snacks from Costco, and got the oil in the car changed for the road trip when...disaster struck.

A year and a half ago, we found out that our oldest son Adam had biliary atresia, a condition where the bile ducts in his liver did not form correctly. He had surgery, an operation called the Kasai procedure, to connect his intestines directly to his liver so that the bile could flow out of his system. The doctors warned us that if he ever had a fever that couldn't be explained by flu or cold, it might be an infection of the liver.

Last Tuesday, Adam came down with a fever and started acting very sick. Wednesday, I took him in to the doctor's office for some labs. When the results came back, we were admitted to the Emergency Room at Doernbecher Children's Hospital. Adam was diagnosed with probable cholangitis (infection of the bile ducts), and put on a two-week regimen of IV antibiotics. An ultrasound showing increased scar tissue in his liver indicated that there might be more problems than just the cholangitis, but the doctors decided that's a problem for another day.

Turns out we're pros at trips to the hospital now. When we found out we had to go in, we had clothes, toiletries, blankets, the laptop, and the phone charger packed in five minutes. David took the night shift and I took the day shift--and aunties Amy, Jessica, and Ange helped out with the kids.

Our summer vacation was supposed to start on Sunday. Instead, we were released from the hospital on Monday, after a five night stay. A nurse came to our house and showed us how to administer the antibiotics through the PICC line in Adam's arm. No Oregon beaches for us this summer--we'll be roasting 'smores in our own backyard. No tide pools and surf this week--we'll be keeping a certain little boy's arm sterile and out of the sand.

While we're a little sad to have spent our summer vacation at the hospital, it's wonderful having our oldest boy (almost) healthy again. And though we're sorry to miss all the activities and time spent with friends, my husband would probably tell you that between camp food and hospital food, there isn't a whole lot of difference.

Adam hated being in the hospital room and wanted to go out
to the courtyard every chance he could get.

He really missed his twin Oliver who was only there for a few short visits.

Marcus was a trooper and stayed up at the hospital all day each day.

Pictures courtesy of Grammy Pics.

Heading home -- too tired to be excited.

1 comment:

  1. I'm so sorry to read this. Littles ones should not have to go through things like this. I'm glad he is al right.


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